Savannah went to the ER in January for a stomach virus (which we now know was rotavirus). About 10 days later, she went on the backpacking trip. We had a nice 4-day weekend over Valentine's and President's Day and ready to get back to school. However, on Tuesday February 18th, Savannah woke up with severe pain, which radiated down her right arm and through her legs. She was able to get to my room to wake me up at 6:30am (Alex was already on a run). I decided to take her to the ER, but discovered she couldn't even walk out to the car. Owen was able to carry her to the car and go with me. She got an IV (after one failed attempt and then an ultrasound to locate a vein) and started on some meds and fluids (similar story to just 3 weeks prior except she was too weak to walk this time). We were there for about 5 hours, and then they decided she needed to be transferred to the main hospital where they had pediatrics. Once there, all the testing began. She got a second IV so they could pump meds from both sides. Again, they had to use ultrasound to locate a vein (after 2 more failed attempts - I tried to warn them about the first IV...but I guess they didn't believe me.) She developed a fever once there. They did blood work, urine and stool samples, chest x-ray, and an MRI that first day. It was 10:00pm that Tuesday before she started the MRI. She had a horrible time with that, because she had a fever (so she was shaking a little bit) and she had to lay still and flat for 1 hour and 40 minutes! She was crying and in pain. At one point, I thought they were done. However, as they checked on her, they just had a nurse inject some more pain med through her IV and then sent her back in. They did that MRI on her chest and spine (and didn't even get to the main source of pain that night, which was her arm). I think it was pretty torturous for a child. I don't think even a healthy adult could lay in there for that long. They still needed an MRI on her arm, so they decided to do that under anesthesia. That was a better experience for her, except that she developed a massive headache after that MRI. Her vision was spotted in one eye and she had pain radiating on the back of her head, so it sounds like she got a migraine. She also had to fast all morning, so she was already extra weak. That was Thursday afternoon by the time they did the 2nd MRI. She was still able to get up to go to the bathroom with my assistance, but every time she got up it made her feel nauseous and she was very wobbly while walking (it was almost like trying to help a drunk person walk straight).
Another painful part of the process was the meds themselves. They attempted to give an antibiotic the first day to "cover the bases", but she immediately puked it up. They were pumping Tylenol and Toradol in her system, but when injecting Toradol it felt like her arm was burning. By the 2nd time they did that one, I was going to say "no" to getting that again, since it made her arm hurt so much for the next hour. When they tried just the next round of Tylenol, she also complained of burning, so they figured it was the IV ports that needed to be changed. So they removed both IV's from her arms and decided to put one new one in. More failed attempts and another ultrasound to find the vein... they're always so confident they can find the vein without assistance. However, when time for the next round of Toradol, it still had the same pain and burning in the new port. That was the end of that medicine... I said "no more of that" and so they switched to an Oxycodone pill. I think that was pretty effective at managing her pain. She got better at swallowing pills in the hospital.
I stayed in the hospital with her for the 4 nights and 5 days we were there. I only left for a few hours total all week to come home and get some clothes and food. Alex offered to stay a night, but I said "no" because I couldn't do that to Savannah! She didn't want anyone else helping her go to the bathroom, and I also knew that Alex's snoring might keep Savannah from sleeping. One of the most annoying things about the hospital is how frequently they send people in to check on you. They were coming every 2-3 hours through the night, so it was hard to get some good rest. The night she had the migraine was probably the most annoying because she couldn't get comfortable and her head hurt. We listened to church hymns and I stroked her head for a while until she finally fell asleep. Just 5 minutes later, someone came in to announce the "shift change" and she woke up. I had just worked so hard to get her to sleep! Again, I spent about 30 minutes to get her to sleep and someone else came in to check her vitals. Ugh... I know they're just doing their job, but didn't they realize how desperately she needed to sleep and how hard it was to do that?
She had all kinds of people coming during the day - a group of about 7 nurses and doctors standing in there each day, talking about their observations and recommendations. She hated everyone looking at her and asking questions. She had a neurologist, occupational therapist, physical therapist, child specialist, psychiatrist, and activities person coming in. She was a little annoyed at the timing of the activities person, who came in very cheery and asking if she wanted to go to the activities room to do arts and crafts or something. She still felt weak and tired and had no desire to do anything. She attempted to do some coloring on a tray on her bed on Thursday, but it made her head hurt. I was glad to see her writing in a notebook on Friday. She wanted to go home pretty much after the first day, but she had to stay for more tests, evaluations, and to get stronger at walking safely. I think they wanted to make a diagnosis before she left, but they couldn't come up with anything. They tested for all the usual things and couldn't find anything from the MRI's. The stool sample detected rotavirus, which was likely traces from her previous stomach virus (she didn't have any diarrhea or vomiting issues this time, aside from the antibiotics that didn't stay down). Her bloodwork also indicated a common cold, which explained the congestion in her nose. She wasn't ever coughing though. They couldn't come up with anything that explained the pain in her arms and legs and her mobility issues.
It was a little amusing talking with the psychiatrist. He asked all kinds of questions, probing into her personal life at home and school. When he found out about Owen and Weston, he asked more about her relationship with them. She grinned a little bit and admitted to having arguments sometimes with one of her brothers. I added that it was her older brother (Owen). When he asked more about that and things they fought about, she couldn't really pinpoint anything specific. He then asked if Owen had come to visit her in the hospital (we had been there a few days already). She quietly said "no". He asked if Weston had come visit and she said "yes", because he had been able to visit for a little bit before his band concert the night before. So it made Owen look like the "mean brother" who didn't even want to visit her (he just hadn't had the chance to yet because of volleyball). We've been teasing Owen about being the "mean brother" now, a suspected culprit of Savannah's stress! Owen did come in to visit and messaged about how she was doing.
Savannah had several friends and people from church stop by to see her at the hospital and at home. She got so many gifts and flowers and cards. I tried to gather up most of the things at home and take a picture - it shows how much love and support were shown. The daughter of one of Alex's colleagues even used her own money to buy a whole bag full of things for Savannah. That was so nice of her! Savannah's young women class from church came over during part of their lesson time on Sunday to visit and bring cards for her.
I was touched by Savannah's own compassion that she showed towards me. Even though she was in pain and not feeling good most of the time, she was concerned about my comfort. She was worried about my comfort sleeping on the couch. She often asked if I wanted her to order some food for me from her menu. She made sure what we were watching on TV was something I wanted to watch. We ended up watching quite a few home makeover shows on HGTV since we both like that stuff. It was pretty hard on me and my patience was thin at times. At first, she couldn't even bend her elbow far enough to feed herself, so I was feeding her. And it was me helping her get up and go to the bathroom, brush teeth, shower (the last day), wipe her nose, just sit there with her and listen to her complaints, or try to comfort. I took on the role of being the full-time caregiver and it felt like I was taking care of an elderly person. Savannah did have random moments of laughing out loud (even in the middle of a lot of pain) or while talking to the doctors, so I ended up laughing too. She seemed a little loopy at times.
It wasn't very hopeful throughout that week for an end in sight to our hospital stay, but by Saturday they said they she could go home. We were definitely ready to get out of the hospital. I think it was hard mentally to get better with the hospital surroundings. By Saturday her pain was managed well and she was feeling quite a bit better. She was getting by on Aleve twice a day. We did try skipping the Aleve one evening since she was feeling pretty good, but the next morning she was awake at 5:00am with most of the pain she had been experiencing. That was frustrating to see it all return just by simply skipping the medicine. After a full week, she went to church (this past Sunday) and then stopped taking the Aleve.
She still hasn't fully recovered though. It's been over 2 weeks and she still can't get up / stand up on her own. Her core strength is still too weak for her to get up without assistance, so I'm still the full-time caregiver and have to help her to the bathroom and get out of bed. She hasn't been able to return to school yet, so she's been doing her schoolwork at home. She had 2 follow-up visits with the pediatrician and the blood work from this week actually showed that she has walking pneumonia. Finally some kind of diagnosis that has a specific treatment (antibiotics)! But we don't know if that was the initial problem or just something else she got recently. I'm hoping it's all related so that her muscle issues can get resolved. The pediatrician told me not to help her anymore (almost suggesting I was hindering her getting better). However, she still needs a little help getting up. Right there in the doctor's office, the doctor tried to get her to stand up on her own. We sat there and watched her struggle for a whole minute and she couldn't quite do it. So not helping at all is not the right thing yet.
Savannah really missed Kai while in the hospital. That was the first thing she wanted to do at home - pet the dog!
I had to miss a few different things while Savannah was in the hospital. I missed Owen's first volleyball game and his first tournament of the season. I also missed the 2nd game that was away the following week. I missed Weston's honor band concert and a temple trip birthday celebration with friends. Alex and Weston got to go to the temple. I hate missing things, but I needed to take care of Savannah. I did have a tender mercy that let me know the Lord was aware of me and my desires. Alex and I made a commitment when we got married to go to the temple once a month. We've been able to keep that commitment nearly every month except when temples were closed during Covid. I thought this might be a missed month since I couldn't make it to the friend temple trip earlier in the month. Our closest temple was closed last week, so my only chance was to make it to the Newport Beach Temple. Last Monday, I got online and looked up times for Friday (the last day of the month). There was only ONE appointment left for the whole day to serve in the temple. Everything was already full. I took that one reservation and knew it was meant for me. It was at 12:30 on Friday. I was hoping that Savannah would have been back at school, but she wasn't ready yet. It wasn't a deal breaker. I decided to take her with me. I got her set up in the waiting room and did my 30-minute service. Savannah had brought her temple recommend too, and so we asked if she could take a peek at the baptistry. All temples have their own beauty and unique designs, so I wanted her to be able to have a look while there. They asked if she wanted to do some confirmations, and so she was able to do a little bit of temple service as well. It worked out perfectly. We even got there early enough to go out for lunch before my appointment. Now traffic back home was another story... 4 hours later we got home. I was able to keep my commitment though, and in that moment I felt like the Lord was being my caretaker.
(I guess I made her Bear Bear book too early - she had her there the whole time and Bear Bear went in the MRI with Savannah.)
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